January 17, 2011

BIG NEWS: Help Us Fight SMA

Okay, so, I have some big news to share with you. We are currently working on an album of Lullabies. The album is going to be titled, "Sweet Water Child ~ Lullabies for Getty" and all proceeds from the sale of the record will be going to help fund research to fight Spinal Muscular Atrophy, as well as to help one precious 9 month old baby who is fighting for her life, Getty Storm--or Getty Owl, as she is known. We don't have a release date for the record set yet as it's still a work in progress, but there you have it.

ALSO, I will be performing a few songs from the upcoming Lullabies album TOMORROW NIGHT (January 18th) at a charity gala here in Los Angeles. The event is being put on by Hope For SMA and The Sophia's Cure Foundation, two charities that help in the fight against Spinal Muscular Atrophy (SMA), which is pretty much the most awful disease you can think of--genetic, degenerative, and terminal--and it effects 1 in 6,000 infants born today. Please join us for the gala, or if you can't make it, please consider a donation to Sophia's Cure.

Here are the details for the gala:

Hope for SMA
Charity Fundraising Gala

Tuesday, January 18, 2011
7:00 – 10:00 p.m.

Cost is $125 per person

J Restaurant & Lounge
1119 S. Olive Street
Los Angeles, CA 90015

Enjoy Dinner, Special Guests, Live Entertainment,
Dancing, Silent Auction, and Valet Parking.

Join us for A Night of Hope on January 18, 2011 as the community rallies together to put an end to the #1 genetic killer of infants, Spinal Muscular Atrophy Type 1. Currently there is no treatment or cure for these babies; their life is a death sentence.

About SMA
• SMA is the #1 genetic killer of children under the age of two
• 1 in every 40 people UNKNOWINGLY carry the gene responsible for SMA
• 1 in 6,000 babies are effected every year
• SMA 1 babies are unable to hold their head, sit, swallow or breathe and require 24 hour care
• The National Institute of Health (NIH) selected SMA as the disease closest to treatment or cure of 600 diseases
•Researchers estimate that we are just a few years away from that treatment/cure.

Sponsorship Opportunities
Please consider making a donation, or sponsoring this event in honor of all those babies that are fighting to live and those that have earned their angel wings.

Diamond: a donation of $10,000 Benefits include two prominent (20 seats ) tables, full color page acknowledgment in program, plus table recognition and introductions.

Gold: a donation of $5,000 Benefits include a prominent table
(10 seats) A full-page color ad, plus table recognition.

Emerald: a donation of $3,500 Benefits include six (6) preferred seats,
half-page color ad in program, plus table recognition.

Ruby: a donation of $1,000 Benefits include two (2) preferred seats,
Quarter page ad, and table recognition.

For more information about Spinal Muscular Atrophy, please visit www.HopeForSMA.org. Another great resource is Families of SMA.

To donate to help Baby Getty and the Storm Family directly, please visit their blog, www.GettyOwl.com. Thank you so much.

1 comment:

Anonymous said...

We are so honored by the naming of the album after little Getty and for the dedication to the fight SMA.

It is a terrible disease, taking so many children, but there is hope for a cure.

Thank you for your support!

Hoot hoot!